Skip to main navigation menu Skip to main content Skip to site footer
Padjadjaran of Nursing Journal

Review

Vol. 11 No. 3 (2023): Jurnal Keperawatan Padjadjaran

Scoping review of grief studies in Indonesia

DOI
https://doi.org/10.24198/jkp.v11i3.2318
Submitted
June 24, 2023
Published
2023-12-01

Abstract

Background: One death can cause nine bereavements. Considering the impact of human loss, studies on grief are crucial for better bereavement care services.  

Purpose: This study examined studies on grief conducted in Indonesia. Indonesian grief research mapping will identify study gaps and suggest further research.  

Methods: The reporting for a scoping review adhered to the PRISMA (preferred reporting elements for systematic review and meta-analysis) statement for a scoping review. A systematic screening was performed in MedLine, Embase, CINAHL, Web of Science, Scopus, and PubMed, as well as manual searches via Google Scholar, Portal Garuda, and relevant studies without language and date restrictions. The data retrieved in the literature were analyzed descriptively, and the themes were developed using NVivo software.

Results: Based on the 18 included studies, the types of grief studies in Indonesia can be divided into pre- and after-loss grief areas. Regarding the themes of the studies that have been conducted in Indonesia, five themes can be derived, related to (1) study purposes, (2) cause of grief, (3) population, (4) concept being studied, and (5) outcomes being studied.

Conclusion: There is significant room for growth in the grief research field in Indonesia. It will be vital for researchers in Indonesia to perform additional studies on pre-loss grief, other studies connected to interventional trials, and further studies examining variation in the outcomes.

Article Matrics
Abstract views : 1411 times PDF Downloads: 874

Downloads

Download data is not yet available.

References

  1. Aoun, S. M., Rumbold, B., Howting, D., Bolleter, A., & Breen, L. J. (2017). Bereavement support for family caregivers: The gap between guidelines and practice in palliative care. PLoS ONE, 12(10), e0184750. https://doi.org/10.1371/journal.pone.0184750
  2. Arksey, H., & O'Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19-32. https://doi.org/10.1080/1364557032000119616
  3. Betriana, F., & Kongsuwan, W. (2019). Lived experiences of grief of Muslim nurses caring for patients who died in an intensive care unit: A phenomenological study. Intensive Crit Care Nurs, 52, 9-16. https://doi.org/10.1016/j.iccn.2018.09.003.
  4. Betriana, F., & Kongsuwan, W. (2020). Grief reactions and coping strategies of Muslim nurses dealing with death. Nursing in critical care, 25(5), 277-283. https://doi.org/10.1111/nicc.12481
  5. Damar AP, du Plessis G. (2010) Coping versus grieving in a "death-accepting" society: AIDS-bereaved women living with HIV in Indonesia. J Asian Afr Stud, 45(4):424-31. https://doi.org/10.1177/0021909610373904.
  6. Djelantik, A., Aryani, P., Boelen, P. A., Lesmana, C. B. J., & Kleber, R. J. (2021). Prolonged grief disorder, posttraumatic stress disorder, and depression following traffic accidents among bereaved Balinese family members: Prevalence, latent classes and cultural correlates. J Affect Disord, 292, 773-781. https://doi.org/10.1016/j.jad.2021.05.085
  7. Djelantik, A. A. A. M. J., Smid, G. E., Mroz, A., Kleber, R. J., & Boelen, P. A. (2020). The prevalence of prolonged grief disorder in bereaved individuals following unnatural losses: Systematic review and meta regression analysis. J Affect Disord, 265, 146-156. https://doi.org/https://dx.doi.org/10.1016/j.jad.2020.01.034
  8. Eisma, M. C., Rosner, R., & Comtesse, H. (2020). ICD-11 prolonged grief disorder criteria: Turning challenges into opportunities with multiverse analyses. Front Psychiatry, 11, 752. https://doi.org/10.3389/fpsyt.2020.00752
  9. Fauziah, N. R., & Kahija, Y. F. L. (2017). Grieving experience after mother's suicide. Jurnal Empati, 6(4), 266–275. https://doi.org/10.14710/empati.2017.20067
  10. Geni, P. L., & Rahmania, Q. J. H. (2013). The relationship between coping styles and anticipatory grief in parents of children diagnosed with cancer. Humaniora, 4(1), 241-247. https://doi.org/10.21512/humaniora.v4i1.3434
  11. Guldin, M. B. (2014). Complicated grief - A challenge in bereavement support in palliative care: An update of the field [Article]. Progress in Palliative Care, 22(3), 136-142. https://doi.org/10.1179/1743291X13Y.0000000078
  12. Hopf, D., Eckstein, M., Aguilar-Raab, C., Warth, M., & Ditzen, B. (2020). Neuroendocrine mechanisms of grief and bereavement: A systematic review and implications for future interventions. Journal of Neuroendocrinology, 32(8), e12887. https://doi.org/https://dx.doi.org/10.1111/jne.12887
  13. Indah, R. (2021). Valuing subaltern and grieving patients: Power issues in doctor-patient interactions in post-disaster Aceh, Indonesia. International Journal of Disaster Risk Reduction, 61, 102326. https://doi.org/https://doi.org/10.1016/j.ijdrr.2021.102326
  14. Kustanti, C. Y., Chu, H., Kang, X. L., Huang, T. W., Jen, H. J., Liu, D., Shen Hsiao, S. T., & Chou, K. R. (2021). Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis. Palliat Med, 2692163211066747. https://doi.org/10.1177/02692163211066747
  15. Kustanti, C. Y., Chu, H., Kang, X. L., Liu, D., Pien, L. C., Jen, H. J., Shen, S. H., Chen, J. H., & Chou, K. R. (2021). Evaluation of the performance of instruments to diagnose grief disorders: A diagnostic meta-analysis. Int J Nurs Stud, 120, 103972. https://doi.org/10.1016/j.ijnurstu.2021.103972
  16. Kustanti, C. Y., Chu, H., Kang, X. L., Pien, L. C., Chen, R., Tsai, H. T., & Chou, K. R. (2022). Anticipatory grief prevalence among caregivers of persons with a life-threatening illness: A meta-analysis. BMJ Support Palliat Care, Online First: 11 February 2022. https://doi.org/10.1136/bmjspcare-2021-003338
  17. Kustanti, C. Y., Fang, H. F., Linda Kang, X., Chiou, J. F., Wu, S. C., Yunitri, N., Chu, H., & Chou, K. R. (2021). The effectiveness of bereavement support for adult family caregivers in palliative care: A meta-analysis of randomized controlled trials. J Nurs Scholarsh, 53(2), 208-217. https://doi.org/10.1111/jnu.12630
  18. Kustanti, C. Y., Jen, H. J., Chu, H., Liu, D., Chen, R., Lin, H. C., Chang, C. Y., Pien, L. C., Chiang, K. J., & Chou, K. R. (2023). Prevalence of grief symptoms and disorders in the time of COVID-19 pandemic: A meta-analysis. Int J Ment Health Nurs, 32(3), 904-916. https://doi.org/10.1111/inm.13136
  19. Lundorff, M., Holmgren, H., Zachariae, R., Farver-Vestergaard, I., & O'Connor, M. (2017). Prevalence of prolonged grief disorder in adult bereavement: A systematic review and meta-analysis. J Affect Disord, 212, 138-149. https://doi.org/https://dx.doi.org/10.1016/j.jad.2017.01.030
  20. Mariyana, R., & Betriana, F. (2021). "I checked her while she was sleeping just to make sure she was still alive": A qualitative study of parents and caregivers of children with chronic disease in Indonesia. Journal of Pediatric Nursing, 59, e7-e12. https://doi.org/10.1016/j.pedn.2021.01.014
  21. Mas’amah, Adu, A. A., Bunga, B. N., Liem, A., & Kiling, I. Y. (2023). Death, funeral rituals, and stigma: Perspectives from mortuary workers and bereaved families. Pastoral Psychology, 72(2), 305-316. https://doi.org/10.1007/s11089-022-01053-9
  22. Mujahidah, Z., Hamid, A. Y. S., & Susanti, Y. S. E. P. (2015). The experience of loss and grief in mothers who have experienced the death of a baby in Depok. Jurnal Keperawatan Jiwa, 3(2), 40-52. https://doi.org/10.26714/jkj.3.2.2015.40-52
  23. Mujahidah, Z., & Suwarningsih, S. (2021). The relationship between social support and loss and grief among landslide and flood victims. Jurnal Ilmiah Kesehatan, 13(1), 120-128. https://doi.org/10.37012/jik.v13i1.417
  24. Neria, Y., & Litz, B. T. (2004). Bereavement by traumatic means: The complex synergy of trauma and grief. J Loss Trauma, 9(1), 73-87. https://doi.org/10.1080/15325020490255322
  25. Nugraha, D., Salamah, S., Luke, K., Wibowo, Z. K., Witarto, A. P., Deswima, C., Kloping, N. A., Witarto, B. S., Syamlan, A. T., Irzaldy, A., Rochmanti, M., Sari, D. R., Sakina, S., & Alkaff, F. F. (2023). Evaluation of health-related quality of life and mental health in 729 medical students in Indonesia during the COVID-19 pandemic. Medical Science Monitor, 29. https://doi.org/10.12659/MSM.938892
  26. Parkes, C. M. (1998). Bereavement in adult life. BMJ, 316(7134), 856-859. https://doi.org/10.1136/bmj.316.7134.856
  27. Pitman, A., Stevenson, F., King, M., & Osborn, D. (2020). Self-reported patterns of use of alcohol and drugs after suicide bereavement and other sudden losses: A mixed methods study of 1,854 young bereaved adults in the UK. Front Psychol, 11, 1024. https://doi.org/10.3389/fpsyg.2020.01024
  28. Priastana, I. K. A., Haryanto, J., & Suprajitno, S. J. I. J. o. H. R. (2018). The role of family social support in chronic grief among the elderly who have lost their spouse in the Pakurenan culture. Indonesian Journal of Health Research, 1(1), 20-26. https://doi.org/10.32805/ijhr.2018.1.1.8
  29. Putranto, R., Mudjaddid, E., Shatri, H., Adli, M., & Martina, D. (2017). Development and challenges of palliative care in Indonesia: Role of psychosomatic medicine. Biopsychosoc Med, 11, 29. https://doi.org/10.1186/s13030-017-0114-8
  30. Rahmawati, R., Putri, E. M. I., & Azizah, F. (2021). Society Dimensions Reviewed from Loss & Grieving in Covid-19 Pandemic Era. Nurse and Health: Jurnal Keperawatan, 10(1), 18-25. https://doi.org/10.36720/nhjk.v10i1.209
  31. Richman, S. (2022). Grief and Chronic Disease. CINAHL Information Systems: Glendale, CA, USA
  32. Ristriyani, R., Rachmawati, I. N., & Afiyanti, Y. (2018). Children's HIV status and the acceptance stage of grief amongst HIV-positive women. Makara Journal of Health Research, 22(2), 69-73. https://doi.org/10.7454/msk.v22i2.8545
  33. Rochmawati, E., Wiechula, R., & Cameron, K. (2016). Current status of palliative care services in Indonesia: A literature review. Int Nurs Rev, 63(2), 180-190. https://doi.org/10.1111/inr.12236
  34. Samutri, E., Widyawati, W., Nisman, W. A., Gittelsohn, J., Hadi, H., Lewis, E. C., Endriyani, L., Indrayana, S., & Afita, A. M. R. (2022). The experience of chronic sorrow among Indonesian mothers who have suffered recent perinatal loss. Open Access Macedonian Journal of Medical Sciences, 10(T8), 114-121. https://doi.org/10.3889/oamjms.2022.9502
  35. Shear, M. K. (2012). Grief and mourning gone awry: pathway and course of complicated grief. Dialogues Clin Neurosci, 14(2), 119-128. https://doi.org/10.31887/DCNS.2012.14.2/mshear
  36. Shear, M. K., Ghesquiere, A., & Glickman, K. (2013). Bereavement and complicated grief. Curr Psychiatry Rep, 15(11), 406. https://doi.org/10.1007/s11920-013-0406-z
  37. Sinaga, A. D., Purwarini, J., & Anggraeni, L. D. (2020). The experiences of mothers with intrauterine fetal death/demise (IUFD) in Indonesia. Nurse Media Journal of Nursing, 10(1), 86-95. https://doi.org/10.14710/nmjn.v10i1.22722
  38. Tao, X., Yu, C. C., & Low, J. A. (2022). Exploring loss and grief during the COVID-19 pandemic: A scoping review of qualitative studies. Ann Acad Med Singap, 51(10), 619-628. https://doi.org/10.47102/annals-acadmedsg.2021460
  39. Tay, A. K., Rees, S., Chen, J., Kareth, M., & Silove, D. (2016). Factorial structure of complicated grief: Associations with loss-related traumatic events and psychosocial impacts of mass conflict amongst West Papuan refugees. Soc Psychiatry Psychiatr Epidemiol, 51(3), 395-406. https://doi.org/10.1007/s00127-015-1099-x
  40. Tricco, A. C., Lillie, E., Zarin, W., O'Brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D. J., Horsley, T., Weeks, L., Hempel, S., Akl, E. A., Chang, C., McGowan, J., Stewart, L., Hartling, L., Aldcroft, A., Wilson, M. G., Garritty, C., Lewin, S., Godfrey, C. M., Macdonald, M. T., Langlois, E. V., Soares-Weiser, K., Moriarty, J., Clifford, T., Tunçalp, Ö., & Straus, S. E. (2018). PRISMA extension for scoping reviews (PRISMA-ScR): Checklist and explanation. Ann Intern Med, 169(7), 467-473. https://doi.org/10.7326/m18-0850
  41. Verdery, A. M., Smith-Greenaway, E., Margolis, R., & Daw, J. (2020). Tracking the reach of COVID-19 kin loss with a bereavement multiplier applied to the United States. Proceedings of the National Academy of Sciences, 117(30), 17695. https://doi.org/10.1073/pnas.2007476117
  42. WHO. (2020). Palliative care. Retrieved July 20, 2023 from https://www.who.int/news-room/fact-sheets/detail/palliative-care
  43. WHO. (2021). WHO coronavirus (COVID-19) dashboard. Retrieved Desember 21, 2021 from https://covid19.who.int/
  44. Yehene, E., Manevich, A., & Rubin, S. S. (2021). Caregivers' grief in Acquired Non-death Interpersonal Loss (NoDIL): A Process Based Model With Implications for Theory, Research, and Intervention. Front Psychol, 12, 676536. https://doi.org/10.3389/fpsyg.2021.676536
  45. Zisook, S., & Shear, K. (2009). Grief and bereavement: what psychiatrists need to know. World psychiatry : official journal of the World Psychiatric Association (WPA), 8(2), 67-74. https://doi.org/10.1002/j.2051-5545.2009.tb00217.x
  46. Zisook, S., Simon, N. M., Reynolds, C. F., 3rd, Pies, R., Lebowitz, B., Young, I. T., Madowitz, J., & Shear, M. K. (2010). Bereavement, complicated grief, and DSM, part 2: complicated grief. J Clin Psychiatry, 71(8), 1097-1098. https://doi.org/10.4088/JCP.10ac06391blu