Keywords
end stage renal disease
lived experience
Abstract
End stage renal disease (ESRD) is a serious chronic disease that resulted from complications of chronic renal failure and a final diagnosis that requires treatment modalities such as dialysis or continuous ambulatory peritoneal dialysis (CAPD). However, CAPD is rarely selected as renal replacement therapy by ESRD patients in Indonesia. Therefore, the phenomenon associated with patients undergoing CAPD is unclear, especially in Indonesia. The purpose of this study was to explore the lived experiences of ESRD patients undergoing CAPD therapy. The research method employed qualitative descriptive phenomenology. The participants in this study were 10 ESRD patients with CAPD. Data collection utilized semi-structured interviewed and data was analyzed using the Colaizzi approach. The result of the study was explained through 6 themes. These are: 1) Condition improved with CAPD, 2) Freedom of activity, 3) Between feeling better and bored 4) Health is increased, 5) It is sustained life, 6) Resignation to accept illness. In conclusion, the patients with CAPD felt significant positive changes in their life and CAPD is considered life-sustaining for the participants, as the majority of the symptoms was decreased significantly. Therefore, the partisipants felt their conditions improved better. The unpleasant sides of CAPD are feeling bored. The support of the family is important as it produced strength and passion for patients in undergoing CAPD
References
Abdurahman, A., Bandiara, R., & Supriyadi, R. (2019). Mon-055 The Growing Burden Of End Stage Renal Disease In Indonesia: Ten Years of The Indonesian Renal Registry Reports. Kidney International Reports, 4(7). https://doi.org/10.1016/j.ekir.2019.05.843
Airheart, J. W. (2016). Lived Experiences of Individuals with End-Stage Renal Disease on Peritoneal Dialysis. Retrieved March 4, 2020, from https://digitalcommons.gardner-webb.edu/nursing_etd/253
Alharbi, A. A., Alraddadi, R. M., Alharbi, A. A., & Alharbi, Y. A. (2017). Comparison of Saudi Arabian hemodialysis and peritoneal dialysis patients’ illness perceptions. Renal Failure, 39(1), 187-192. https://doi.org/10.1080/0886022x.2016.1256314
Awuah, K. T., Afolalu, B. A., Hussein, U. T., Raducu, R. R., Bekui, A. M., & Finkelstein, F. O. (2013). Time to recovery after a hemodialysis session: Impact of selected variables. Clinical Kidney Journal, 6(6), 595-598. https://doi.org/10.1093/ckj/sft120
Chan, Y. M., Zalilah, M. S., & Hii, S. Z. (2012). Determinants of compliance behaviours among patients undergoing hemodialysis in Malaysia. PloS One, 7(8), e41362. https://doi.org/10.1371/journal.pone.0041362
Chao, J.-Y., Chien, H.-C., Kuo, T.-H., Chang, Y.-T., Li, C.-Y., Wang, M.-C., & Yang, Y.-H. K. (2018). Assessing the effect of oral activated vitamin D on overall survival in hemodialysis patients: a landmark analysis. BMC Nephrology, 19(1), 1-11. https://doi.org/10.1186/s12882-018-1111-2
Charles Corr. (2015). A “New Normalâ€: life on dialysis-the first 90 days. National Kidney Foundation, Inc.
Christensen, M., Welch, A., & Barr, J. (2017). Husserlian descriptive phenomenology: A review of intentionality, reduction and the natural attitude. Journal of Nursing Education and Practice, 7(8), 113-118. https://doi.org/10.5430/JNEP.V7N8P113
Colaizzi, P.F. (1978) Psychological research as a phenomenologist views it. In: Valle, R.S. and King, M., Eds., Existential-Phenomenological Alternatives for Psychology, Oxford University Press.
Ekelund, M.-L., & Andersson, S. I. (2010). “I need to lead my own life in any caseâ€â€”a study of patients in dialysis with or without a partner. Patient Education and Counseling, 81(1), 30-36. http://dx.doi.org/10.1016/j.pec.2009.10.025
François, K., & Bargman, J. M. (2014). Evaluating the benefits of home-based peritoneal dialysis. International Journal of Nephrology and Renovascular Disease, 7, 447. https://dx.doi.org/10.2147%2FIJNRD.S50527
Ghaffar, M. R. A., Chasani, S., & Saktini, F. (2017). Perbandingan Kualitas Hidup Pasien Penyakit Ginjal Kronik yang Diterapi dengan Continuous Ambulatory Peritoneal Dialysis Atau Hemodialisis (Comparison the Quality of Life of Patients with Chronic Kidney Disease Treated with Continuous Ambulatory Peritoneal Dialysis or Hemodialysis). Diponegoro Medical Journal (Jurnal Kedokteran Diponegoro), 6(4), 1518-1528.
Hwang, S. J., Tsai, J. C., & Chen, H. C. (2010). Epidemiology, impact and preventive care of chronic kidney disease in Taiwan. Nephrology, 15, 3-9. https://doi.org/10.1111/j.1440-1797.2010.01304.x
Jung, H.-Y., Jang, H. M., Kim, Y. W., Cho, S., Kim, H.-Y., Kim, S.-H., . . . Jo, S. K. (2016). Depressive symptoms, patient satisfaction, and quality of life over time in automated and continuous ambulatory peritoneal dialysis patients: a prospective multicenter propensity-matched study. Medicine, 95(21). https://doi.org/10.1097/md.0000000000003795
Lin, C.-C., Han, C.-Y., & Pan, I.-J. (2015). A qualitative approach of psychosocial adaptation process in patients undergoing long-term hemodialysis. Asian Nursing Research, 9(1), 35-41. https://doi.org/10.1016/j.anr.2014.10.007
Makkar, V., Kumar, M., Mahajan, R., & Khaira, N. (2015). Comparison of outcomes and quality of life between hemodialysis and peritoneal dialysis patients in Indian ESRD population. Journal of Clinical and Diagnostic Research: JCDR, 9(3), OC28. https://dx.doi.org/10.7860%2FJCDR%2F2015%2F11472.5709
Morris, A., Liles, C., & Roskell, C. (2015). Exploring the challenges of living with peritoneal dialysis. Journal of Renal Nursing, 7(4), 175-178. http://dx.doi.org/10.12968/jorn.2015.7.4.175
Mulyana, Y., Trisyani, Y., & Emaliyawati, E. (2020). Relationship between healthcare provider’s perception about patient safety and patient safety implementation in the emergency department. Jurnal Keperawatan Padjadjaran, 8(1). https://doi.org/10.24198/jkp.v8i1.995
Ören, B., & Enç, N. (2013). Quality of life in chronic haemodialysis and peritoneal dialysis patients in T urkey and related factors. International Journal of Nursing Practice, 19(6), 547-556. http://dx.doi.org/10.1111/ijn.12098
Paraskevi, T. (2011). The role of sociodemographic factors in health-related quality of life of patients with end--stage renal disease. International Journal of Caring Sciences, 4(1).
Potter, P. A., & Perry, A. (2005). Fundamental of Nursing, Concept, Process and Practice. Mosby Company.
Rahmawati, P., & Muljohardjono, H. (2016). Meaning Of Illness Tinjauan Komunikasi Kesehatan Dalam Perspektif Islam (Meaning Of Illness in a Health Communication Review in an Islamic Perspective). Jurnal Komunikasi Islam, 6(2), 105-117. https://doi.org/10.15642/jki.2016.6.2.105-117
Riskesdas. (2013). Riskesdas 2013. Kementerian Kesehatan RI. Retrieved March 18, 2020, from https://pusdatin.kemkes.go.id/resources/download/general/Hasil%20Riskesdas%202013.pdf
Sahaf, R., & Ilali, E. S. (2017). Uncertainty, the overbearing lived experience of the elderly people undergoing Hemodialysis: a qualitative study. International Journal of Community Based Nursing and Midwifery, 5(1), 13.
Shari, W. W., Suryani, S., & Emaliyawati, E. (2014). Emotional Freedom Techniques dan Tingkat Kecemasan Pasien yang akan Menjalani Percutaneous Coronary Intervention (Emotional Freedom Techniques and the level of anxiety of patients who will have percutaneous coronary intervention). Jurnal Keperawatan Padjadjaran, 2(3). https://doi.org/10.24198/jkp.v2i3.83
Tannor, E. K., Archer, E., Kapembwa, K., Van Schalkwyk, S. C., & Davids, M. R. (2017). Quality of life in patients on chronic dialysis in South Africa: a comparative mixed methods study. BMC Nephrology, 18(1), 4. Retrieved from https://doi.org/10.1186/s12882-016-0425-1
Ulrich, S. (2008). Cancer and Grief. Retrieved January 29, 2020, from https://www.amazines.com
Yalamanchili, H. B., Murray, P., Awuah, K. T., Harden, P., Finkelstein, S. H., & Finkelstein, F. O. (2013). The experience of dialysis therapy among younger adults. Paper presented at the Advances in peritoneal dialysis. Conference on Peritoneal Dialysis.
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
Copyright (c) 2021 Jurnal Keperawatan Padjadjaran